How to prepare for your appointment with the specialists?

prepare appointment

You are the leader in the daily care of your condition. Therefore, you and the healthcare team will work together in the management of your drug-resistant epilepsy.

To have a productive and successful appointment, it is important to be prepared and organized; talk to the clinicians and provide as much information as possible. The information that you collect will be very valuable to decide what assessments and treatments are right for you.

You may feel overwhelmed because you have too much to do, but do not worry; break the list down into actionable steps in order to make it more manageable. Work with a family member, partner, trusted friend or someone who is willing to help. Do one thing at a time and remember, you probably have some of this information already available.

Medical history

A family member, partner or a friend are always welcome:

If you have copies of your medical records including test results, bring them with you. Make sure you have copies of the tests (EEG, CT Scan, MRI, etc.) saved in a CD or USB flash-drive along with copies of the written reports. You are entitled to obtain your medical records from all offices, clinics and hospitals you have visited. Talk to each provider to request these copies and records. Plan ahead, keep in mind that fulfilling record requests can take time and you may need to complete some authorization forms.

Share the history of your seizures and also, if you have been diagnosed with other conditions.

A family member, partner or a friend are always welcome:

A family member, partner or a friend are always welcome:

Having a family member or a trusted friend with you during the appointments will be helpful. Read more about bringing someone with you to the appointment.

Diary

Diary

Monitor and track your seizures in a diary. This will help you and the healthcare team better understand, diagnose and manage your condition.

It is OK to share how you feel

It is OK to share how you feel

Discuss with the epileptologist / healthcare team if you have noticed any changes in mood.

Hobbies and activities of interest

Hobbies and activities of interest

Let the epileptologist/healthcare team know what activities you would like to be able to perform. Activities that make you feel good, energized and happy are important.

Goal settings

Goal settings

Share with the epileptologist/healthcare team what personal/occupational goals you want to achieve and how the treatments can help. Set 5 goals to be discussed with the epileptologist/healthcare team. By setting goals you will be motivated and more productive, and they will help you to achieve what you want in life.

Feel free to ask questions

Feel free to ask questions

Mention to the epileptologist/healthcare team that you have specific questions that you would like answered before you leave their office. Create a list of very specific questions that are important for you and related to the visit. Be prepared and empowered.

Talk to the specialist/healthcare team about referrals to other providers

Talk to the specialist/healthcare team about referrals to other providers

Other healthcare providers will contribute with their expertise in the management of specific conditions. (i.e. social worker, therapists.).

Some institutions and communities offer support groups to help you enhance your well-being and increase knowledge through educational programs.

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