{"id":4862,"date":"2023-06-26T09:42:00","date_gmt":"2023-06-26T13:42:00","guid":{"rendered":"https:\/\/itsyourepilepsy.com\/?p=4862"},"modified":"2023-08-21T12:36:58","modified_gmt":"2023-08-21T16:36:58","slug":"journey-through-uncontrolled-epilepsy","status":"publish","type":"post","link":"https:\/\/itsyourepilepsy.com\/es\/journey-through-uncontrolled-epilepsy\/","title":{"rendered":"Journey Through Uncontrolled Epilepsy"},"content":{"rendered":"\n

Blog article written and provided by Lisa Schreiner.<\/strong><\/p>\n\n\n\n

I come from an Italian family, of twelve children. We had just come home from church, and I had my first tonic-clonic seizure by dropping in a clothes basket. That’s when my life with epilepsy began.  Once my parents took me to a doctor, they kept it a secret and hidden from my teachers in high school \u2013 which eventually they had to tell them in order for me to graduate. <\/p>\n\n\n\n

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I finally got married and I had my first baby. Had my last tonic-clonic seizure during his birth. Epilepsy is very hard to handle for someone, not under control, and even harder for a woman.   <\/em><\/p>\n<\/blockquote>\n\n\n\n

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I had four children, and during my pregnancies, I dealt with many changes from hormones, to having seizures, to the effect meds had on the babies.  Due to the auras, I had to carry my babies on my left hand only because I experience my auras on my right hand, and I was afraid of dropping my babies. During one of my pregnancies, one of the seizure medications caused Thyroid Disease for both my baby and me \u2013 luckily, we caught it in time.<\/p>\n\n\n\n

Surgery was tough, I knew what was going to happen but the first time I was expecting to be seizure-free \u2013 it never happened! Never go into surgery thinking you will be seizure free, go in just a decrease, I was depressed for months, until the next surgery. Multiple Subpial Transection I did four times. I got a big decrease of complex partial seizures.<\/p>\n\n\n\n

I did the Adult Ketogenic diet in 1998 for one year. Helped some till I had to change meds.<\/p>\n\n\n\n

2001 had Vagus Nerve Stimulator was put in. I had for 8 months caused sleep apnea and it was turned off but only turned on when I had a seizure, someone would swipe with the magnet to help.<\/p>\n\n\n\n

My VNS was taken out the same year the DBS was put in. Had a DBS surgery March of 2022 but still waiting for some change but so far, no change at all.<\/p>\n<\/div>\n\n\n\n

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No options on seizure meds again.  I got involved with the Epilepsy Foundation of Eastern Pennsylvania. I became a volunteer and mentor at Camp Achieve, Young Adult Retreat<\/strong> and I help with the Epilepsy Walk in Lehigh Valley.<\/p>\n","protected":false},"excerpt":{"rendered":"

Blog article written and provided by Lisa Schreiner. I come from an Italian family, of twelve children. We had just … Leer m\u00e1s<\/a><\/p>\n","protected":false},"author":12,"featured_media":4881,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[4,10],"class_list":["post-4862","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-resources","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-33"],"acf":[],"_links":{"self":[{"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/posts\/4862","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/users\/12"}],"replies":[{"embeddable":true,"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/comments?post=4862"}],"version-history":[{"count":0,"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/posts\/4862\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/media\/4881"}],"wp:attachment":[{"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/media?parent=4862"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/itsyourepilepsy.com\/es\/wp-json\/wp\/v2\/categories?post=4862"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}